So up until now this pregnancy has been uneventful. Baby girl S is happy, moving, with a good heartbeat and loves to kick the bejeezus out of anyone who dares lay their head or body on 'her' belly. Things have been nice..
The day of my 21 week anatomy scan everything changed. I went in for the ultrasound by myself; the IPs could not make it down for the appointment. I saw flickers of concern on the tech's face as she did the scan, but of course she didn't say anything to me. I thought I saw a couple of 'things' but I kept my questions to myself, knowing that if anything was perceived to be wrong the midwives office would call me and let me know what was going on. My IPs had asked to receive a copy of the report, so before heading home I stopped by the office and signed a medical release so that the midwives could contact them about the pregnancy. Little did I know that telling the midwives to call them first would prove to have been a big mistake.
On my way home I started receiving ominous texts from the mother. 'This is not good, this is a problem' 'We have to do something right away' I had no idea what this all meant until she called me. I couldn't make out a lot of what she was saying but the impression that I got was something was wrong with the baby. The midwives office called while I was on the phone with her, but I couldn't answer it in time. So I called them back.
The baby definitely has a cleft palette. She also has a cyst on her brain, which will likely resolve itself before birth. The ultrasound was unable to detect a stomach bubble, which is indicative of some problems which may require surgery immediately after birth. And (this is the 'big' one) they suspect the baby has Down's Syndrome.
They requested I get the Quad Screen done, which I immediately went and got done. And then came the kicker. The mother called me, still in a state of hysteria I would say, and tells me that 'we do not intend to bring a child into the world that has a significant disability and will require several surgeries to survive'.
WHAT!? What happened to 'this is my child I can't just throw him/her away'?? Where is this coming from! As I try to explain that nothing they are saying is 'wrong' is a death sentence for the baby. The physical problems are fixable, and Down's Syndrome is a socially accepted condition that has the potential for the child to be a thriving part of society. She is still talking termination. I remind her that this does NOT qualify under the terms of our contract and she states that she disagrees. I start to question what we put in the contract. I was so sure that they were not the 'baby's not perfect, let's terminate' type.. I didn't stress over the language regarding abortion/reduction. Even as it is, looking at my contract later it states that there must be 'severe fetal abnormality' which to me means life-threatening condition where the baby most likely will not survive outside of the womb. This does not qualify!
I'm appalled. I'm disgusted. I'm in a state of shock. I'm contacting a lawyer to see what my options are. But altogether.. I'm really just stuck once again.
And so here I am: sitting in my living room the night before the big peri-natologist appointment that will give us some much needed answers, unable to sleep for the fear and anxiety that is building up every moment that I have to realize that the time to see the IPs and the time to have the ultrasound is getting closer. I can't even fathom what I"m going to say to them or how I"m going to react given the runaround that has happened since Monday. I really wish I wasn't going to this appointment alone.
Wish me luck you guys.. I'll have more info tomorrow. And either I'll be posting in elationn that the u/s was wrong and Baby S's fate has been spared.. or I might be posting in anger and plotting what my next step will be. Who knows.. only time will tell.