Tuesday, March 1, 2016

RARE Disease Day: Leap Year 2016



February 29th is a day that only comes around once every 4 years. It's 'borrowed time', as commonly asserted.. a day to celebrate all things that are unique and rare. The Rare Disease Foundation uses this date as their day of recognition. After all, what could be so Rare as a child with an uncommon illness or disability? A day in June perhaps.. but even a gorgeous summer day can't compare with some of the beauty seen in the eyes of a child who has overcome life threatening illness and come out the other side still smiling. That beauty is what I've seen in S since the very first kicks inside my belly. She's always been a fighter, and her story encourages others as they encounter their own hurdles in life.

Leap Day is supposed to be a day where we appreciate the unique; the uncommon, but also a day of opportunity. Do you know where you were on Leap Days during your lifetime? I can't say for most of them.. but I know that on Leap Day 2012 I was 23 weeks pregnant with a precious little girl. I was terrified. I felt trapped, like I had no way out. Mere days away from the 'final deadline' I felt alone and scrutinized over a decision that I didn't know how to make. I still remember the words of my mother 'you have to do what you feel in your heart is right.. no matter what people will say or think'. 
That lesson has been one I've struggled with for my entire life. From the encounters in middle school where I was afraid to go to school with crutches.. or my anxiety about leaving them home on days I felt ok without them.. to decisions that I've made for my children, I've always worked hard on remembering who I am, what's important to me, what's best for me and the people around me, and letting that be enough. Nothing says that more than the twists and turns of the Baby S Story and the incredibly results that I've seen from Miss S herself. I love that girl; and she is my inspiration to keep pushing every day. 
Elisabeth and I have been hard at work over the last year, and we are thrilled to be able to put this book back up on the Amazon marketplace. We hope to expand the reach of this novel, and bring some of the ethical issues into the limelight that is needed to get people thinking about the value of human life, and the politics of surrogacy. Being on the other side now, I realize the need for these issues to be addressed, and the only way to do that is to start the conversation. I hope to be having a lot of conversations in the next year. So please, buy a copy for your mom, for your church group, for your local library. Share the link with the teachers and lawyers that you know and the single moms and special needs warriors alike. Together our voice can be heard. 

This year I spent Leap Day with two very sick little guys.. my 6 year old has a double ear infection and my 2 month old has RSV. It was far from a glamorous event to see.. bodily fluids and disarray everywhere. Regardless I was still sure to take my daily moment of thanks and thank every part of the universe that made this entire journey possible. S is a once in a lifetime child.. and I get to be her birthmother. I could not be more thankful. <3 span="">

Wednesday, January 7, 2015

Turning it all around!!

New Year's Day 2015
The Day it all changed

For many years now, I've lived under the shadow of the emotional trauma that comes with the type of experience that I've had. 

I had my good times,and my bad times. The bad times probably outweighed the good most of the time, but there were still some very good times. 
I've lived in a lot of crazy situations since I moved back from Michigan.

*In my ex's parents house
*In a hotel
*In a house that was undergoing eviction
*With my ex
*On my own
*Employed
*Jobless

I always looked for things to get better by some kind of magic. The right job had to fall into my lap, or the right guy had to come along and make everything better. 
It was a story that I'd told myself for so many years that I really believed it. 
Without 'help' I was always just stuck. 

So on New Year's Eve, I took my kids out, and my friend's kids.. and we all had a blast. My daughter's father did not join us. 
He did not come home afterwards either. 
I. Was. Angry. 

 But as I lay in my bed the next morning, all alone, I had an epiphany of sorts if you will. 
I realized that my actions were my own, and that maybe I had something to do with how the night had ended. After all, my anger had turned a simple miscommunication into a big fight that he had decided not to come back because of. 

And that was when it hit me. 
I wasn't living in a way that was making things better. 
I was living a life of anger, disappointment, and hurt. And it was hurting those around me.
Very quickly I realized some very important things:

I had to Live In Love if I wanted things to be different.

I had to Live in Hope

I did it once before.. with a little girl named S. She was the greatest teacher of  
Love and Hope
that I could possibly have asked for. 
Through her, I know that living in love is possible. I know that living with hope is worthwhile. I know that great things can truly happen. 

So now I am living in Hope
Hope that you all believe in these things as much as I do. 
The lessons that I learned while carrying this girl are things that apply to people of all ages, all backgrounds. They are messages of self-worth, of determination and strength. 
These are the stories that the world NEEDS to hear! 

The biggest part of livin in Love and Hope when you are working to enrich the lives of others is always to also be sure you are living in Action!

The Ultimate Love Story:
Saving Stormie: The Baby S Story

We are running a campaign on Kickstarter  
it ends Jan. 24th

The goal is to raise $9000
which will be used for 
Publication expenses
Attorney fees
Author's Insurance
Travel to Michigan for records

We are offering several donation levels, with many different prizes for donating. 
We have t-shirts
ornaments
Personalized thank you notes
opportunities to ask questions
naming of a character
and art rewards coming in the last two weeks! 

We would be so thankful for your support! 
It has  been stated elsewhere before, but our supporters are the reason that Baby S has made it as far as she has. We love you!!

You can follow the link above or click HERE